The U.S. Food and Drug Administration (FDA) has recently approved the PARI eRapid electronic nebulizer as the first of its kind that's suitable for giving Pulmozyme treatments to people with Cystic Fibrosis.
An Efficient Treatment Method
Pulmozyme is a drug manufactured by Genentech, which is frequently prescribed to Cystic Fibrosis patients. It helps thin mucous buildup in the lungs and can reduce the risk of respiratory infections.
Many patients need several Pulmozyme treatments per day, and the eRapid nebulizer system can help them receive the medication more efficiently. Normally, Pulmozyme treatments take an average of 6-8 minutes. However, when patients get the medicine via the eRapid, that timeframe is shortened to just 2-3 minutes. Because many patients are on daily Pulmozyme regimens for years, those saved minutes go a long way, and could help encourage adherence to doctors’ orders.
Patient Preferences and Satisfying Outcomes
The eRapid system has already been used for years in Europe with successful results, and was distributed under the eFlow Rapid brand name. However, PARI decided to introduce it to the United States after input from the Cystic Fibrosis Foundation indicated an electronic nebulizer marketed for general use could improve patient compliance.
In a clinical trial involving Pulmozyme treatments delivered with the eRapid, pediatric patients had a 10:1 preference for the device, while that choice was echoed as a 20:1 preference among adults. Users appreciated the quick treatment times and small, easily portable size of the eRapid. Patients in the study were also generally more satisfied with treatments when using the eRapid.
To read more about the study, click here. Nebology is the first online retailer to sell the eRapid electronic nebulizer system. You can purchase it after obtaining a prescription from your physician or pulmonologist.
Reposted from an article on The Atlantic in December by Christine Schrum -
"Doctors told me cystic fibrosis would kill me by age 15. My mom told me I just had allergies. After a childhood of Ayurvedic treatments, I've embraced Western medicine as an adult, without abandoning my alternative roots.
In my memory, I am 11 years old, lying on a massage table in a dimly lit room. Two women are rubbing herbalized oil into my skin. At first, I’m a little insecure about my bony ribs and chest, but as the women’s hands sweep across my body, I settle into a state of deep relaxation.
I’m at an Ayurvedic spa—the first of its kind in Northern Ontario in the 1980s. This is decades before yoga and Lululemon will become household terms throughout North America. My mother has learned about Ayurveda, an ancient healthcare system from India, and has driven me through several hours of January snow to a spa in Huntsville, Ontario, where she hopes the words cystic fibrosis will be abolished from our vocabulary.
I was first diagnosed with the fatal lung disease when I was just a few months old. I’d been a healthy, hefty 10.2 pounds at birth, but the weight gradually whittled away as I failed to thrive on Mom’s breast milk and developed a croupy whooping cough. By sheer coincidence, her best friend, Gloria, happened to catch a TV program on babies with cystic fibrosis. She immediately called my mother and told her to lick my forehead to see if it tasted salty. It did. That was my first CF diagnosis, albeit an informal one..."
If you’re a cystic fibrosis or COPD patient who has been prescribed inhaled tobramycin solution to treat a respiratory infection, receiving your treatment just got much simpler. That’s because the FDA has recently approved Kitabis Pak - a new version of inhaled tobramycin that comes packaged with the LC Plus Nebulizer. It's the first product of its kind that combines the inhaled drug with the device needed to administer it - all for just one co-pay! Get everything you need to follow doctor’s orders, conveniently with one kit.
Since this new drug + device combination is now available, you can immediately start treatment using the nebulizer cup tested and approved for use with inhaled tobramycin. Physicians can also feel confident prescribing Kitabis Pak, knowing patients will get what they need to start treatments.
The PARI LC Plus Nebulizer delivers treatments in an average time of just 6-7 minutes, is easy to clean, and has clinically proven efficacy and safety. Also, because your doctor no longer needs to write a separate prescription for the drug and nebulizer, that makes it simpler to get treatments started - one prescription, one co-pay, and one pharmacy!
Currently, Kitabis Pak is being exclusively distributed by PARI Respiratory, the makers of the LC Plus. Through PARI's network of specialty pharmacies, you can find Kitabis Pak - your new drug+ device option for inhaled tobramycin.
The kit you'll receive includes a 28-day supply of the drug (56 single use ampules), the PARI LC Plus reusable nebulizer, Wing Tip Tubing, and patient information and instructions.
Ask your doctor about Kitabis Pak - it's a new product, so he or she may need more information. Find more about Kitabis Pak online and hopefully the next time you are prescribed inhaled tobramycin treatments, you can choose the option that's simplest and most beneficial to you!
Hundreds of children throughout Chicago, IL and Kansas City, MO have gotten sick from a rare respiratory virus, and health officials believe it may have affected people in about a dozen other states. Known as Enterovirus D68, it's a viral strain normally associated with the common cold. Although the majority of people have only gotten ill with symptoms akin to having a bad cold, kids who have asthma and other respiratory ailments are more likely to require hospitalization because of the virus.
A Snapshot of Who's Gotten Sick
More than 500 kids have been treated at Children's Mercy Hospital for severe respiratory illnesses. Furthermore, at the end of last month, nine of 25 total patients in the pediatric intensive care unit at the University of Chicago Medicine Comer Children's Hospital appeared to have the virus. Many who were diagnosed had other issues that could put them at high-risk. The average age of the patients was four years old. However, there were also sick children as young as six weeks of age, up to 16 years old.
No Special Precautions to Take
Health officials say no deaths have been reported, and the usual precautions to prevent the spread of illness like washing hands thoroughly and avoiding sharing utensils with sick people apply in this case too. However, if you have a child with asthma who's feeling under the weather, it's a good idea to be proactive and make a doctor's appointment, especially since this virus is known to present itself more severely in kids with respiratory problems.
There is a great deal of debate among parents and healthcare professionals about why some conditions like asthma are so common among today’s children. A recent study may offer some insight. It suggests the material on which an infant sleeps may play a role in determining whether or not he or she is diagnosed with asthma as a young child.
German Researchers Evaluated Thousands of Babies
For the purposes of the study, scientists in Germany recruited about 3,000 babies and got permission to track them as they grew up. More than half the study participants slept on bedding made with animal fur during their first three months of life. That single factor appeared to greatly reduce an infant’s risk of later developing asthma.
Clear Benefits Documented
The infants that were exposed to animal fur bedding were 80 percent less likely to be diagnosed with asthma by the age of six. The positive trend continued as the babies grew older, as those children were 40 percent less likely to have asthma by the age of 10.
Similar Benefits Linked to Households With Pets
Kids that grow up in households with pets are also less likely to suffer from asthma. This emerging information is worth thinking about if you’re shopping for baby supplies, and more specifically, bedding materials. It also may cause you to change your mind if you’re feeling hesitant about trying to raise an infant and take care of a pet or two at the same time.
If a child in your household has asthma, now is a great time to work with his or her healthcare provider to come up with a health management plan to reduce flare-ups and the severity of symptoms experienced while at school.
It’s important to do this for a couple of reasons: Firstly, having such a plan should make it easier for your child to fully participate in school activities. Furthermore, scientists from Northwestern University recently completed a study that suggests school systems are not adequately prepared to help kids deal with asthma attacks.
As a parent, you can be proactive by providing the necessary information to school administrators, and equipping them with insight about your child’s diagnosis.
Specifics of the Study
Chronic medical conditions affect up to a quarter of American children, and asthma is among the most common issues. However, researchers looked at data from students attending Chicago Public Schools (CPS), the third-largest school system in the United States. They found only one in four students with asthma had a health management plan on file at school. Minority groups and students from low-income families were less likely to submit plans to schools.
Creating a Plan
A health management plan should always be made with the guidance of your child’s doctor. Some of the things it might contain include descriptions of what triggers your child’s asthma, the medications or devices used to help manage the condition, and advice about when to seek emergency care.
You probably spent a great deal of time helping your child pick out new clothes and school supplies for the current academic year. Put the same amount of importance on making sure school officials know what to do to help your child manage asthma issues.
Cystic Fibrosis (CF) is a hereditary and chronic disease that affects the respiratory and digestive system with a sticky and thick mucous. If you’re the parent of a child who’s been diagnosed with CF, it’s important to build a strong support system. Both healthcare providers and fellow parents can be invaluable for helping you and your child live mutually fulfilling lives.
Help Your Child Enjoy a Life That’s as Normal as Possible
Immediately after receiving a diagnosis, start meeting with specialists and forming a healthcare strategy so your youngster can maintain good health as much as possible. Besides that, try to make it possible for your child to participate in many of the same activities as his or her peers. Whether that means eating a school lunch or playing sports, those things might seem relatively minor, but they promote proper development. Aim to encourage normalcy without compromising health.
Have Honest Conversations
The way you talk to your child about CF will change based on factors like age and maturity level. Explain how CF is not contagious, but because it’s a genetic disease, it could be passed to offspring. Also, emphasize while there is no cure, researchers are working hard to find one. You can also discuss how clinical trials are used to test new medicines and devices that could help CF patients live better.
Explain Purposes and Consequences
Throughout your child’s life, you’ll likely be advised to pursue a number of different treatments. When possible, use simple language to explain how those interventions work and why they’re needed. If an aerosol therapy program is recommended, we sell products just for kids, such as masks that have smaller dimensions and feature fun designs. More importantly, talk about what could happen if your child either intentionally or mistakenly misses a treatment.
For more information, about parenting a child with CF, check out the links below:
- http://forum.cysticfibrosis.com/forums/4-Families - (Forum for families affected by CF)
- Cystic Fibrosis Foundation
- Cystic Fibrosis Parent Handbook from Seattle Children's Hospital
For many people, the distinctive aroma of chlorine in the air near a swimming pool is enough to bring about positive memories of summertime fun. Chlorine can also be an irritant for people who suffer from asthma. Below, you can read about some possible side effects of chlorinated water, and if you should avoid swimming altogether because of an asthma diagnosis.
Symptoms for People With Asthma
After exposure to chlorine, people who suffer from asthma may be more likely to experience symptoms such as tightness in the chest, trouble breathing, wheezing, and nasal congestion. Excessive coughing could also be a problem especially when laughing, during exercise, or at night.
Put Chlorine Levels in Perspective
People don’t usually pay much attention to the chlorine concentration in a swimming pool. For someone living with asthma though, the amount of chlorine in the water could make a significant difference in overall enjoyment.
A chlorine level of 1.0 parts per million (PPM) is considered high, and there are some variations for recommended chlorination levels. It’s suggested that some private pool owners keep the chlorine content at 2.0 PPM, so you may want to speak up about your sensitivity to chlorine before going swimming in a neighbor’s pool.
A chlorine level of 0.5 PPM is at the low end of the spectrum, and anything below that is considered ideal for asthma sufferers.
Also, remember that saltwater pools are becoming more and more popular. Check with your local pools to see if there are any saltwater options in your area.
If you’re like most people, you’re probably always looking for things that could help you feel better. Some individuals who use nebulizers have found success by using inhaled hypertonic saline.
Even if your doctor hasn’t brought up the possibility of using inhaled hypertonic saline, it’s always worthwhile to be proactive in learning about strategies that may improve your health. Keep reading to find out more about inhaled hypertonic saline and why it may be a good option, especially if you have cystic fibrosis.
A Study of Cystic Fibrosis Patients
In 2004, the results of an Australian study were presented at a cystic fibrosis conference. It’s already known that the lungs of cystic fibrosis patients lack an adequate amount of salt and water. Researchers wondered if inhaled hypertonic saline would help compensate for the deficiencies, while also clearing thick mucus from the lungs.
Results of the Research
Participants were split into two groups. One group used nebulizers to inhale a normal saline solution, while the other was given a hypertonic saline solution that had a 7 percent salt content. Although both groups saw improvements in lung function, the individuals who inhaled the hypertonic saline enjoyed greater gains, and had a lower likelihood of lung infections.